A recent study from the University of Chicago surveyed 729 medical oncologists on their practice of discussing prognosis with their terminally ill cancer patients (J Clin Oncol 2008 Nov 24, epub). Although 98% of them said they would tell these patients that they will die, 48% of them would only discuss prognosis if the patient brought up the topic. When asked if they routinely communicated an estimate of time as to when death is likely to occur, 43% said they always or usually communicate but 57% said sometimes, rarely or never, when asked by their patients for the time frame. When asked about their training in prognosis communication skills, 73% of the respondents replied that they had no or inadequate training.
Effective communication is an important skill to have in all walks of life. For the doctor, delivering good news is all too easy because the reaction from the patient and relatives is always positive. There are no awkward moments and everyone feels good about it. However, when bad news is delivered, the uncertainty of how the patient and relatives will react to the news can make the doctor feel uneasy. Some may not know how best to handle the situation, especially if they have not been formally taught in medical school.
Discussing prognosis and time frame with the patient is important. This gives the patient time to settle his / her affairs with loved ones and colleagues. It allows them to plan on what they want to accomplish or do in the remaining days. In certain circumstances, the doctor can play a meaningful role by tempering the over ambitious expectations of the patient and relatives in terms of what they can achieve in the time remaining. The doctor can help in prioritizing what to do.
Doctors, like patients, are humans. The prognostication is based on statistics. Hence, when the doctor says 6 months, it is not cast in stone. A patient and his / her relatives must realize that it can be shorter or longer than 6 months. Multiple factors, such as the general starting condition of the patient, nutritional status after the diagnosis, the patient’s frame of mind and response to palliative treatment modalities all play a role in determining the time frame.
I believe in discussing time frame with my patients. However, I always emphasise to my patients that this does not mean they should give up and sit there waiting for the fateful day. While both the patient and I must be realistic in our expectations, we should still try to live and enjoy those days as full and as best we can. The doctor’s roles are to guide the patient in choosing the right management plan for him / her, to ameliorate symptoms and thus improve the quality of life, to offer a sympathetic ear at times of distress and despair and when all has failed, to let the patient know that you are still there.
Treating a patient with terminal illness is like setting out on a journey together. Sometimes you do things and someitmes you just walk in silence. You only leave when your patient asks you to or you have reached the end of the road with your pateint. The journey can be longer or shorter but it does not matter. We should try to make it a smooth journey with a sprinkle of hope.

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